How We Think About Dementia: Personhood, Rights, Ethics, the Arts and What They

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Providing a much-needed accessible overview of the complex philosophical and ethical underpinnings of dementia care, this book explores current thinking around the concepts of ageing, personhood, capacity, liberty, best interests and the nature of palliative care, shedding new light on their implications for the caring professions.

FORMATPaperback LANGUAGEEnglish CONDITIONBrand New Publisher Description

Exploring concepts of ageing, personhood, capacity, liberty, best interests and the nature and ethics of palliative care, this book will help those in the caring professions to understand and engage with the thoughts and arguments underpinning the experience of dementia and dementia care. Dementia is associated with ageing: what is the significance of this? People speak about person-centred care, but what is personhood and how can it be maintained? What is capacity, and how is it linked with the way a person with dementia is cared for as a human being? How should we think about the law in relation to the care of older people? Is palliative care the right approach to dementia, and if so what are the consequences of this view? What role can the arts play in ensuring quality of life for people with dementia? In answering such questions, Julian Hughes brings our attention back to the philosophical and ethical underpinnings of dementia care, shedding new light on the significance and implications for those in the caring professions, academics and researchers, and those living with dementia and their families.

Author Biography

Professor Julian C. Hughes is Consultant in Old Age Psychiatry for Northumbria Healthcare NHS Foundation Trust and Honorary Professor of Philosophy of Ageing at the Policy, Ethics and Life Sciences (PEALS) Research Centre, Newcastle University. He is co-author of Ethical Issues in Dementia Care: Making Difficult Decisions, also published by JKP. He lives in Newcastle, UK.

Table of Contents

Preface. Introduction. Part I: Ageing. 1. Our Changing Expectations of Life: What Do We Really Want? 2. Research, Ageing and Dementia. Part II: Personhood. 3. Memory: Inner or Outer? 4. I am still the same person. 5. The Body in Dementia. Part III: Capacity and Incapacity. 6. 'Capacity': What is it and so what? 7. Capacity Legislation in Practice: Balancing Personal and Polis. 8. Incapacity and Mental Disorder. Part IV: Palliative and Supportive Care. 9. Beyond Hypercognitivism. 10. Understanding the Language of Distress. 11. Ethics, Patterns, Causes and Pathways: In Pursuit of Good Palliative Care. 12. Intentions and Best Interests: Dying and Killing. Part V: Arts. 13. The Art and Practice of Memory and Forgetting co-authored with Ashley McCormick, artist, curator and educator. 14. In Praise of 'Negative Capability': Keats and Killick. Conclusion: Care – Solicitude and Solidarity. References and Further Reading. Index.

Review

In this book, Julian Hughes makes a powerful and compelling case for a revolution in the treatment of people with dementia. He underscores the need to summon immediately the personal and political will to engage people with dementia as people who respond positively to the solicitude and open engagement provided by those deemed healthy. Viewing dementia and ageing in the broad scope of human life, yet without romanticising illness, Hughes challenges professional and lay carers to open their minds and hearts to create what Buber called, "I-Thou" relationships with people diagnosed with dementia, so as to improve the lives of all concerned. He does this on philosophically, ethically, sophisticated grounds as a philosopher, on medically sophisticated grounds as an old age psychiatrist, and on aesthetically sophisticated grounds as a humane, spiritually alive human being. This book will benefit many audiences, including, perhaps most importantly, people with dementia. -- Steven R. Sabat, Ph.D., Professor of Psychology at Georgetown University and author of The Experience of Alzheimer's Disease: Life Through a Tangled VeilJulian Hughes uses a rich combination of science, law, history, ethics and philosophy to illustrate the complex nature of dementia and how we view it. Through a series of fascinating case studies illustrating real life complex scenarios, and with superb clarity of writing, he gently challenges our current approaches to people with dementia – above all emphasising the need to see through the narrow illness to the broader person within. An excellent and stimulating book. -- John T. O'Brien, DM, F Med Sci, Foundation Professor of Old Age Psychiatry, University of CambridgeHow We Think About Dementia is a book directed at professionals or people who are familiar with research and medical terminology... Hughes identifies ethical concerns through the use of case studies. Within these case studies, circumstances are shared that bring to light challenges that may be encountered by caregivers... Services, ethical considerations, methods and barriers to care are covered well in the book from a professional perspective... the majority of the book provides a sense of direction for professionals (medical doctors, psychologists, psychiatric nurses, occupational therapists, etcetera) in caring for a patient with dementia. -- Lynne Trevisan, Assistant Professor, College of Health, Human Services, and Sciences, Ashford University * metapsychology online reviews *

Promotional

An accessible overview of the complex philosophical and ethical underpinnings of dementia and dementia care

Long Description

Exploring concepts of ageing, personhood, capacity, liberty, best interests and the nature and ethics of palliative care, this book will help those in the caring professions to understand and engage with the thoughts and arguments underpinning the experience of dementia and dementia care.Dementia is associated with ageing: what is the significance of this? People speak about person-centred care, but what is personhood and how can it be maintained? What is capacity, and how is it linked with the way a person with dementia is cared for as a human being? How should we think about the law in relation to the care of older people? Is palliative care the right approach todementia, and if so what are the consequences of this view? What role can the arts play in ensuring quality of life for people with dementia?In answering such questions, Julian Hughes brings our attention back to the philosophical and ethical underpinnings of dementia care, shedding new light on the significance and implications for those in the caring professions, academics and researchers, and those living with dementia and their families.

Review Text

How We Think About Dementia is a book directed at professionals or people who are familiar with research and medical terminology... Hughes identifies ethical concerns through the use of case studies. Within these case studies, circumstances are shared that bring to light challenges that may be encountered by caregivers... Services, ethical considerations, methods and barriers to care are covered well in the book from a professional perspective... the majority of the book provides a sense of direction for professionals (medical doctors, psychologists, psychiatric nurses, occupational therapists, etcetera) in caring for a patient with dementia.

Review Quote

Julian Hughes uses a rich combination of science, law, history, ethics and philosophy to illustrate the complex nature of dementia and how we view it. Through a series of fascinating case studies illustrating real life complex scenarios, and with superb clarity of writing, he gently challenges our current approaches to people with dementia - above all emphasising the need to see through the narrow illness to the broader person within. An excellent and stimulating book.

Promotional "Headline"

An accessible overview of the complex philosophical and ethical underpinnings of dementia and dementia care

Description for Reader

Exploring concepts of ageing, personhood, capacity, liberty, best interests and the nature and ethics of palliative care, this book will help those in the caring professions to understand and engage with the thoughts and arguments underpinning the experience of dementia and dementia care. Dementia is associated with ageing: what is the significance of this? People speak about person-centred care, but what is personhood and how can it be maintained? What is capacity, and how is it linked with the way a person with dementia is cared for as a human being? How should we think about the law in relation to the care of older people? Is palliative care the right approach to dementia, and if so what are the consequences of this view? What role can the arts play in ensuring quality of life for people with dementia? In answering such questions, Julian Hughes brings our attention back to the philosophical and ethical underpinnings of dementia care, shedding new light on the significance and implications for those in the caring professions, academics and researchers, and those living with dementia and their families.

Description for Sales People

Author is well-known internationally as an expert in the fields of dementia, ethics of care and philosophy of ageing

Details ISBN1849054770 Author Julian C. Hughes Publisher Jessica Kingsley Publishers Year 2014 ISBN-10 1849054770 ISBN-13 9781849054775 Format Paperback Imprint Jessica Kingsley Publishers Place of Publication London Country of Publication United Kingdom DEWEY 362.19683 Media Book Pages 248 Illustrations 2 black and white photographs Subtitle Personhood, Rights, Ethics, the Arts and What They Mean for Care Short Title HOW WE THINK ABT DEMENTIA Language English Publication Date 2014-07-21 UK Release Date 2014-07-21 NZ Release Date 2014-07-21 Audience Professional & Vocational AU Release Date 2014-07-14 We've got this

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